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Stiff person syndrome: Celine Dion’s diagnosis explanation


Earlier on Thursday, Canadian singer Celine Dion posted an announcement on Instagram postponing the rest of her world tour that was slated to resume in February.

Dion, 54, said she was recently diagnosed with stiff body syndrome (SPS), also known as Moersch-Woltman syndrome. It’s a rare neurological condition that causes painful muscle spasms. There is no cure for this disease.

“I’ve always been an open book,” Dion says in the emotional video. “And I wasn’t ready to say anything before. But now I’m ready… I’ve been facing my health problems for a long time.”

SPS is described by the US National Institute of Neurological Disorders and Stroke as a disorder with “characteristics” of an autoimmune disorder. It affects the central nervous system and causes a person to become more sensitive to noise, impact, and emotional distress.

Dr Scott Newsome, a neurologist at Johns Hopkins University School of Medicine, told CTV News: “Most commonly, it affects the musculoskeletal system where people really have a lot of pain, the spasms really have a lot of pain. can affect any muscle in the body. Channel on Thursday.


Newsome said the disease is becoming more known because of the many symptoms associated with it including eye muscle problems and intestinal problems.

“It’s likely to be recognised,” he said.

According to the National Institute of Neurological Disorders and Stroke, a stooped or stiff posture is characteristic of a person dealing with SPS. Newsome says it affects twice as many women as men.

For Dion, the condition is affecting her ability to perform.

“The spasm affects every aspect of my daily life, sometimes making it difficult for me to walk and not allowing me to use my vocal cords to sing the way I used to,” Dion said. in videos on Instagram.

Newsome says people are usually diagnosed with SPS in their 40s or 50s, but it can also affect children and older adults.

Although researchers aren’t sure what causes SPS, Newsome says there are ways to relieve pain and symptoms.

“My approach is to look at this from a multifaceted approach,” says Newsome. “The gold standard is to treat everyone with muscle relaxants, but given that it’s an autoimmune condition, we use immune-related therapies for support and then non-pharmacological therapies.” other (such as) occupational therapy.”

As for Dion’s particular case, Newsome says having a “full team” will help her get back to normalcy.

“By putting holistic treatment first to treat people with this condition, I really think people can improve their quality of life,” he said.

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